Some years ago I bought a red light gadget that you insert into your nostrils and it's supposed to help with persistent blocked nose / sinusitis problems, which I have rather a lot of. I wasn't very much impressed and stopped using it. Recently I've dug it out and started again, with more regular and frequent use than I did first time around - and I'm pretty sure it's working....
Friday, 7 August 2026
Wednesday, 5 August 2026
05/08/2026 Anniversary and more
Too long since I posted....
It's the seven-year anniversary of the day we knew for sure that I have myeloma, although the formal diagnosis wasn't until mid-September 2019. I was told I had maybe five to eight years, and I've done seven and am planning on a good few more...
Several test results have come in, including the leg angiogram, and they are all good. Which is sort of bad, because they don't help identify any problems. Nevertheless the GP sent me off for another chest CT - results not due until September sometime.
The persistent cough is now gone, so it looks as if going back onto Omeprazole (proton pump inhibitor to reduce stomach acid) has done the trick. Next step- although not quite yet - will be to come off the Omeprazole to see if the cough returns.
At Chemo today, while the nurse was giving me my Daratumumab injection, she asked if I knew what it cost. My guess was well under the mark. This is a standard myeloma drug and every patient gets it for a few years at some stage. £4,200 a shot! Makes you feel you need to do something to justify it and I do through various online activities, the new mid-Essex patient support group, and so on. But enough? Well, I'll try to update this blog a bit more frequently...
This is the wonderful thing about the NHS - you get what you need irrespective of cost or ability to pay, as long as NICE thinks it's value for money. Far better than the American insurance system...
Subscribe to:
Posts (Atom)