Sunday, 5 January 2020
05/01/20 (4)
Best day on the stairs so far - up and down, both legs, no holding on, carrying (light) things, only one tiny hesitation going up. Very pleased about that, especially as it was quite bad just a couple of days ago.
05/01/20 (3)
Didn't get to sleep till about 04:30 last night because Blue (one of our two rescue cats) came on the bed and demanded attention. She left via my bedside cabinet and a lot of noise, and in the morning I discovered that she'd taken my MedicAlert bracelet and dropped it on the carpet near the door. I was reminded of the time a few years ago when she was new with us and she took both my glasses and one of my hearing aids. I eventually found that on the floor downstairs, and she had bitten a hole right through it. Even with the Boots "lifetime" cover, that cost me £90 IIRC.
Anyway, slept through until about 07:00, then dozed on and off to 09:30. Had breakfast, waited for a modest effect from the FSL anti-constipation regime, and then we went for the "short walk" in Amiral's Park and half a toasted teacake each in the cafe. Some people in there were very interested in my Trionic walker - first time that's happened. And that reminds me that Sue said that last time she was in the GP surgery wearing her Myeloma UK hoodie that somebody asked her about it and said he knew somebody in Writtle with myeloma. It helps to advertise!
Anyway, slept through until about 07:00, then dozed on and off to 09:30. Had breakfast, waited for a modest effect from the FSL anti-constipation regime, and then we went for the "short walk" in Amiral's Park and half a toasted teacake each in the cafe. Some people in there were very interested in my Trionic walker - first time that's happened. And that reminds me that Sue said that last time she was in the GP surgery wearing her Myeloma UK hoodie that somebody asked her about it and said he knew somebody in Writtle with myeloma. It helps to advertise!
05/01/20 (2)
04:00 and I'm off to bed. Not really feeling like it yet but got to draw a line somewhere. The dex has certainly won tonight.
Saturday, 4 January 2020
04/01/20
Last night was a a bit unusual. Went to bed at about 04:45, but a good two hours of that time was spent asleep in my chair in the study. Perhaps the "drowsiness" effect of the increased Thalidomide dose is winning over the sleeplessness effect of the dex? We'll see what happens tonight.
The FSL regime worked OK this morning, so we set off for Maldon in lovely sunny weather. Had a good walk/roll along the Prom and shared a sausage roll in one of the cafes. Walter performed much better than Rolly did back in September before I had even started radiotherapy. Walter goes straight over cracks in the pavement etc. that you have to steer Rolly around or lift him over. Well worth the money.
Me and Walter Walker on the prom - Maldon at low(ish) tide.
The FSL regime worked OK this morning, so we set off for Maldon in lovely sunny weather. Had a good walk/roll along the Prom and shared a sausage roll in one of the cafes. Walter performed much better than Rolly did back in September before I had even started radiotherapy. Walter goes straight over cracks in the pavement etc. that you have to steer Rolly around or lift him over. Well worth the money.
Me and Walter Walker on the prom - Maldon at low(ish) tide.
Friday, 3 January 2020
03/01/20
Had the Velcade shot this morning, after 35 minutes in the waiting room first. Got home to another Sue computer problem, eventually fixed at some cost to both of our blood pressures, stress levels, and etc.. Took the ten 2mg dexes as part of the lunchtime pills.
Did the Pill Organisation Thing and decided to keep the MST going for another week. My hip has taken a hammering over the last few days and it doesn't seem a good time to cut the painkillers any further. If it's no longer as effective as it was there'll be no harm done. Cutting the paracetamol by half hasn't made any substantial difference, I just feel that the "buffer zone" isn't quite as wide as it was. If that makes any sense. Performance on the stairs has slipped back again...
Did the Pill Organisation Thing and decided to keep the MST going for another week. My hip has taken a hammering over the last few days and it doesn't seem a good time to cut the painkillers any further. If it's no longer as effective as it was there'll be no harm done. Cutting the paracetamol by half hasn't made any substantial difference, I just feel that the "buffer zone" isn't quite as wide as it was. If that makes any sense. Performance on the stairs has slipped back again...
Wednesday, 1 January 2020
01/01/20
Just back from a couple of New Year days spent with old friends down in Surrey. Horrible grey misty dank weather but the M25 was kind to us and no delays either way, which is unusual.
Things start getting back to normal with a blood test at the GP surgery tomorrow (including cholesterol at my request, because it's been some years since last time which was a good result), and on Friday I start week 2 of cycle 3 with the Velcade injection and two more dex nights.
No obvious side effects so far from the doubled thalidomide dose or from cutting the paracetamol by half. I think I'll cut the daily morphine sulphate pill out on the next Pill Organisation Day as well, see how that goes.
Things start getting back to normal with a blood test at the GP surgery tomorrow (including cholesterol at my request, because it's been some years since last time which was a good result), and on Friday I start week 2 of cycle 3 with the Velcade injection and two more dex nights.
No obvious side effects so far from the doubled thalidomide dose or from cutting the paracetamol by half. I think I'll cut the daily morphine sulphate pill out on the next Pill Organisation Day as well, see how that goes.
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