Wednesday, 2 July 2025

02/07/2025 Good consultation

'Phone consultation with consultant today after chemo #10 earlier. She was only two hours late...

Here's the news. Paraproteins down to 2, which is very encouraging. Free Light Chain ratio is 1.8, kappa 6.23 and Lambda 3.3 - that's all very good as well. All other blood numbers are fine except platelets a bit low but that's to be expected. Haven't got the full results through yet, they'll come by post. Eventually...

So we continue with six more 3-week cycles of treatment as at present, and she has agreed to cut the dex dose from 20mg to 10, which should help with the sleeplessness and the weekend crash. That will start with the next cycle in three weeks time. I'm reading lots of studies suggesting that lower dex doses are just as effective as higher ones, so that's in line with current thinking. After those six cycles are done she plans to reduce the Daratumumab to "maintenance" i.e. monthly rather than weekly.

All very good. I couldn't be more pleased.

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