One thing I didn't mention about Monday's Zometa is what happened immediately afterwards. The nurse asked me to book the next one in four weeks time. No, I said, should be three weeks, that's what my consultant has said time and again. So she got all the paperwork out and yes, here's a referral for three-weekly Zometa. But she also found a later referral for four-weekly. So I made the appointment for four weeks time and when I got home I phoned Haematology to clarify. Had to leave a message, of course, no Clinical Nurse Specialists available...
On to this afternoon's chemo appointment. To my considerable surprise, no Dara this time (or next), just the Velcade. And no pills to take and then wait for an hour. That nurse checked her paperwork and yes, that's right. Even though according to last consultant conversation I should be staying on weekly Dara for weeks yet.
I can only assume that she must have looked at the most recent bloods results and decided to change the plan. Without telling me, of course, or asking me whether I'd be happy about that. After all, I'm just the patient with the incurable cancer here, how much do I count? I'm starting to wonder.
Anyway, I got a message back from the Haematology Clinical Specialist Nurses. As far as I could understand a very crackly line, they want me to 'phone again tomorrow. So much, by the way, for digital phone "lines" improving call quality. Can't say I've noticed.
Got home from chemo and took my Wednesday dex, rather later in the day than usual. Don't know if or how that will affect my sleep tonight...
No recurrence of the "flu-like" shivering and etc.. Told the chemo nurse about it and agreed might be a reaction to the Zometa, or might just have been waking up after getting a bit cold. But no problem unless it happens again.
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