After another round of all the relevant phone numbers at Broomfield this morning and failing to get through to even a single human being about the CPAP machine that was prescribed for me in September 2021 and promised for Christmas, I did let my normally courteous and polite language slip a bit on the couple of the messages I left. It must have worked, because in the afternoon I had a call from a very pleasant and helpful man from the Respiratory Centre, and now I have an appointment to collect a shiny new machine on the 10th!
Thursday, 2 June 2022
Wednesday, 1 June 2022
01/06/22 To sleep... or maybe not.
It's very early (00:17) on Wednesday morning. Yesterday I went to bed at about this time, an hour and a half earlier than usual and hoping for rather more sleep to stop me dozing off so much during the day. The result, of course,was tat it took an hour and a half to get to sleep rather than the usual minute or two... and I'm still waiting for the NHS CPAP machine I was promised back in September after being diagnosed with sleep apnoea...
On Monday we went to Hanbury Gardens to say hello to some of the Epping Petanque people an to test out my plan of using the folding walking frame (with wheels at the front) to let me play for the first few months. I'll get a bag to strap to the top to hold the boules and other bits and pieces. It should work OK most places, but possibly not in the sand at Birchanger. My plan at the moment is to start driving again in a couple of weeks, gradually extending my range until I start playing again in early July. Crossed fingers, etc.
BP is still high, but a little down on the last couple of days. I have GP appointment already in the diary for the 7th. I 'phoned the secretaries to get a message to him and add it to the subjects to discuss, and they gave me an email address to send my diary a day or two in advance, And the other god thing is that I've got myself off painkillers altogether. Haven't had as much as a paracetamol for two days now. And next round of myeloma blood tests coming on the 6th...
Monday, 30 May 2022
30/05/22 Blood Pressure
After several years of stability around 120/70, give or take, I've been getting some rather higher readings over the last few days. I had my BP taken several times a day when I was in hospital recently, and nobody seemed very worried about it then. The only thing that's changed since then is that I've got myself completely off morphine (an almost completely off paracetamol as well). Ankle/leg oedema is bad again. I feel I should contact my GP - much luck with that these days! Think I'll start a diary tomorrow and let that run for a few days first.
On the other hand, one of my two home BP machines has just indicated a desire for new batteries, which might explain a lot...
Saturday, 28 May 2022
28/05/22 Better than a poke in the eye with a sharp stick
Or is it a blunt stick, I'm never sure and a little searching suggests little to choose between the two versions? Anyway, had a letter from AXA today with the promise of a refund on my 2022/23 premium. The logic is hard to follow but the main point seems to be that because of COVID they paid out less in claims than exacted so we the customers were overcharged. I'm due for £111 back which doesn't make much of a hole in the amount AXA extort from me every year, but better than...
It was a nice day and the roads will be very restricted over the weekend because of a huge London & Essex bike event, so went to Hatfield Heath for brunch at the Village Tearoom. Took the old lightweight three-wheeled walker which is OK on smooth pavements etc. but hopelesws on rough grass, as on the Green:
It still being a very nice day when we got back, took the scooter out for a trip around the local triangle.
All OK apart from a bit of misjudgement turning right out of the drive. There was a big white truck just visible coming from the right rather faster than I judged. Also, my max speed was set low for going over the gravel and I didn't turn it up when I got off the gravel and onto the pavement just before our dropped kerb. The result was that I got across with time to spare, but less of it than I should have had. Several lessons to be learned from that.
Here's a bit of life on the open road:
After that, Pill Organisation which now seems more complicated than before although there are a lot fewer meds. And doing my best to get through the pain attacks (mainly left shoulder) without reaching for a fast-acting morphine capsule. These bursts of pain do pass, if I wait long enough.Slow release morphine now down to one a day, or none, rather tan two a day as at first.
Friday, 27 May 2022
27/05/22 Follow-up
Yesterday's first problem was an Uber driver who parked in the middle of the road a hundred yards away. Apparently he was "looking for his hands-free". Whether he found it or not, he spent most of the drive on the phone in a language neither of us could recognise. And when we got close to the target, it became clear that he didn't recognise the name of the Shard or have any idea of what it looks like. How can you be taxi-driver in London without knowing an iconic landmark that can be seen from half the city?
Anyway, we got there in the end and in time. Mr.Ib was pleased with progress, and we left with a DVD of images from the surgery.. As usual there's quite a learning curve withe viewer that comes along with the images, and to put it mildly I haven't exactly mastered it yet. But here is one image showing my neck and the robot lining up the screws:
He was quite positive about returning to driving in a few weeks, and that of course will mean a return to boules. The sooner the better for my "mental health"!
Wednesday, 25 May 2022
26/05/22 Back to the Shard
Later today, back to the London Bridge Hospital, or the part of it that occupies the bottom two floors of the Shard for an early afternoon follow-up appointment with my surgeon. Considering that it will cost us something in the area of 100 GBP to get there and back, I hope we'll get a fair bit of his time!
Tuesday, 24 May 2022
24/05/22 Physiotherapist
Huge relief to be free of that dressing on Day 14, and to have a shower without having to worry about getting it wet!
Physio appointment yesterday, concentrating on head position. This one is really good - almost good enough to ,make me revise my opinion of physios in general. Romanian, 23 years over here. Later today, the chiropodist cometh. Essex born and bred...
08/10/2026 The best laid plans...
Well, so much for my plan to post rather more frequently. This may have been the longest break yet. The plain fact is that there hasn't ...
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More rain yesterday. Eventually got fed up enough with it that I took the car out in the hope that it might stop for a while when I was clos...
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Rain, rain, rain again. Just perfectly timed to stop me getting my daily exercise by mowing the one bit of grass that hasn't been done y...
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First, the good news. That proto-rash I mentioned on my right thigh has 90% vanished and looks a healthy pink rather than anything nastier. ...



