Thursday, 30 June 2022

30/06/22 Born to Boule

 







After going to Springfield for this month's bloods to be taken, I drove to Ongar for the Wednesday afternoon informal boules session (stopping at M&S for a sandwich on the way). It's wonderful to have that independence back.

Tested my walking frame idea out, and it works just about perfectly. Played half a dozen or so ends before deciding that was enough for a first time - don't want to overstrain my shoulder. Birchanger this evening is a possibility but it's a longish drive and more difficult underfoot. lt'll probably depend on the weather but may be more sensible to wait for Ongar on Sunday morning or/and Epping on Monday...



Wednesday, 29 June 2022

28/06/22 Every day, in every way...

Drove into Chelmsford this morning to get blood taken for a GP blood test. No problems with the driving. Tomorrow, to Springfield for yet more bloods...

Now confidently doing the stairs with just one hand for the handrail etc.. So I can carry small things in the other hand.

... I'm getting better and better.


As for the myeloma, the nervous waiting week begins again tomorrow. Hard to believe that after five months off all treatment it sill hasn't found a way back. I'm just very grateful that it hasn't.


Monday, 27 June 2022

27/06/22 Giant Steps


Continuing the theme of musically-inspired post titles, try this wonderful transcription of Coltrane's classic. If you like that sort of thing, of course. At any rate, it gives me an excuse to work an image into the post!

Three "giant steps" for me yesterday:

1. Used the stairlift just once, to take the morning tea tray downstairs. Otherwise I've done every trip up and down unaided.

2. Tossed a few boules around on the back lawn, using my wheeled walking frame for support. It has a bag strapped to it to hold the boules etc. I found my line was surprisingly good but my length is poor. Can't get any decent range and don't have much control over height of the throw. But very early days yet, and I'm going to need a lot of practice to get strength back into my right arm. Several hours later there's no unpleasant reaction in the shoulder muscles.

3. Went for my first drive in the car since mid-January! All went well, I can use handbrake and transmission selector ok with my left hand. So Sue won't have to drive me around to appointments any more, which will be a great relief to her. And of course it opens up the possibility of gradually getting back to playing some proper boules again. That'll get me out of the house, which will be good for both of us.

That's a lot of progress for one day.

Last night I thought was pretty sleepless but the CPAP machine recorded my best score yet. Very strange. Perhaps I was dreaming being awake all that time?

Sunday, 26 June 2022

26/06/22 King's Head breakfast

 We went to the King's Head in Ongar for breakfast. Obviously too early for most other people:











I had the full english - basically, two of everything - and therefore spent most of the rest of the day in a state of collapse.  Delicious, but you do pay a price for it!

On the other hand, not even the tiniest twinge from that right big toe, and the troublesome muscle below my left ear has been much better as well. Proof, perhaps, that the FEB has unexplored curative powers...

Saturday, 25 June 2022

24/06/22 Walkin' in the Park

 As I hoped, the toe has been much better today - just a few small twinges, nothing like yesterday. I thought it might keep me awake last night but I had a very good night with the CPAP machine recording 8 hours, just 4.5 apnoea events per hour, and a score of 91.

Went to Oaklands Park  late morning for coffees and fresh air. Took the scooter but had a bit of a walk with two sticks as well:













You can't really see it but that's a Myeloma.org.uk t-shirt I'm wearing.

Try The post title or you might prefer the original version without that rather strange Dave Greenslade solo...

;


Thursday, 23 June 2022

23/06/22 (2) Toe

A rather difficult day because of a new pain in my right big toe. It seems to be right inside, between the last joint and the base of the nail. It comes and goes, and it's not very pleasant at all. I'm just hoping that, like most of my foot pains, it'll be gone in the morning (assuming it doesn't give me a sleepless night...) Taking maximum paracetamol but that's having little effect if any.

No idea where it came from or what caused it.

23/06/22 Physio, stairs

Another hot day yesterday and everything ticking over nicely. Our physio was here for Sue's back and knee

<at which point I fell thoroughly asleep. Continuing twelve hours or so later>

but she commented on how well I was walking and offered to help me try the stairs 
(without the stairlift). Success! Did it easily, both up and down. So will try to do that once or twice a day to add to my "exercise" regime...

07/07/26 Red

Some years ago I bought  a red light gadget that you insert into your nostrils and it's supposed to help with persistent blocked nose / ...