Got through the MRI - over an hour of it - OK after the Diazapam and with Sue being allowed in again. No recurrence of the unexpected claustrophobia that contributed to my having to abort the first MRI some three years ago. So that's all good. We're told results will be available in three days. Tomorrow we'll push haematologist Dr.Ch, fresh back from his holidays, fr some progress on booking the PET scan date at Southend.
Sunday, 30 October 2022
Saturday, 29 October 2022
29/10/22 Apologies...
...for rather neglecting this blog for the last several days. Have had to give a lot of time to the Facebook myeloma group that I admin for (now the Lead Admin!), big works in the garden, and so on. Just haven't had the time, or the energy when I have had some time. Visiting friends in Guildford later today, MRI scan Sunday, haematologist consultation Monday. The cataracts are getting me down, and the left leg bone pain isn't going away. I'm sure I've got a new myeloma lesion in that femur. The scan will tell a lot, as will the PET scan in Southend, if I ever get a date for it.
Friday, 21 October 2022
21/10/22 Pictures
This cartoon was posted in the Myeloma Support group. There were complaints about it being "insensitive" and we had to remove it. I suppose it could upset some patients in fear of medical examinations I think it's rather well-drawn and it doesn't bother me at all.
This was taken in the kitchen of the Reid Rooms where we had a meeting about the new defibrillator in the village. It's a beautiful old deck oven, in need of some repairs and restoration. Far too nice to spend its days warming plates in there, it should be working 24/7 in an artisan bakery/
Wednesday, 19 October 2022
19/10/22 Cataract decisions
Decisions made, and not before time as I'm now finding reading anything including computer screens, rather difficult.
Dates are 14/11/22 for the left (worse) eye, and 28/11/22 for the right one. I'm going for Johnson & Johnson "Eyhance" extended depth of focus lenses - right eye optimised for distance and intermediate, left eye biased a bit more towards the intermediate so I should be ok for computer use without glasses. Will still need over-the-counter reading glasses for close vision. Not exactly looking forward to the surgery!
Now to tell Optical Express they've lost my business...
Saturday, 15 October 2022
15/10/22 Politics
Normally I would regard the subject as off-limits for this blog, even in its new and more far-reaching form. But this is not normal. Never, in all my years of watching UK politics, has there been a cock-up so multi-faceted and overwhelming. Never has the Conservative Party, once so famed for its election-winning unity, split apart into so many factions so completely. The mob got the scent of blood with Boris, and now it wants more. That seems to be the only thing holding them together. And once Truss goes, as she surely must before long as her party becomes uncontrollable, what happens next?
I really have no idea.
Thursday, 13 October 2022
13/10/22 Frustrations, annoyances
I 'phoned my haematologist's secretary to progress-chase the PET scan he's organising at Southend. Left a message.
'Phoned Springfield Radiology to check they had got the nrew MRI request form that I emailed to them a couple of days, and hoping for news of an appointment. "Sorry, can't help. The computers are down, can't get into the system."
The secretary called back. He forgot to do it before going off on holiday, sends apologies. Will try to do it online from wherever he is. I'm to get back to her if heard nothing by the end of the month...
More delays!
My cataracts are getting worse, almost "visibly" by the day. Reading low-contrast text on computer screen now very difficult, even with aid of magnifying glass. Unfortunately this includes all the sites I've been looking at for information about multifocal lenses...
This is outside the back door:
The white thing on the fence is the temperature sensor for the weather station that we keep in the kitchen. The eucalyptus tree is in a raised bed made from(very heavy) railway sleepers. Yesterday I noticed that the temperature sensor wasn't there. I think one of the cats must have knocked it off while climbing to an observation post on top of the fence, but obviously neither of them is admitting a thing.
I figured that it must have fallen into the narrow gap between the raised bed and the fence. Too dark to do much about it yesterday evening but this morning, shining a torch into the gap, I spotted a bit of white below the ivy in there. Getting it out was quite a challenge. I devised various plans with duct tape on the end of a stick. But that wasn't needed because after a lot of wiggling with a bamboo cane I managed to work it through the tiny gap under the fence and out the other side (which is also our land). And now I've moved that black container with the red flowers in along and back a bit, so that if the temperature sensor does get knocked off again it will fall into that and not all theway to the bottom of that gap again.
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