24/06/22 Walkin' in the Park

 As I hoped, the toe has been much better today - just a few small twinges, nothing like yesterday. I thought it might keep me awake last night but I had a very good night with the CPAP machine recording 8 hours, just 4.5 apnoea events per hour, and a score of 91.

Went to Oaklands Park  late morning for coffees and fresh air. Took the scooter but had a bit of a walk with two sticks as well:

You can't really see it but that's a Myeloma.org.uk t-shirt I'm wearing.

Try The post title or you might prefer the original version without that rather strange Dave Greenslade solo...

;

23/06/22 (2) Toe

A rather difficult day because of a new pain in my right big toe. It seems to be right inside, between the last joint and the base of the nail. It comes and goes, and it's not very pleasant at all. I'm just hoping that, like most of my foot pains, it'll be gone in the morning (assuming it doesn't give me a sleepless night...) Taking maximum paracetamol but that's having little effect if any.

No idea where it came from or what caused it.

23/06/22 Physio, stairs

Another hot day yesterday and everything ticking over nicely. Our physio was here for Sue's back and knee

<at which point I fell thoroughly asleep. Continuing twelve hours or so later>

but she commented on how well I was walking and offered to help me try the stairs 
(without the stairlift). Success! Did it easily, both up and down. So will try to do that once or twice a day to add to my "exercise" regime...

21/06/22 Slow

Went out for my walk yesterday afternoon, fully intending to do the whole village triangle. But by the time I got two hundred yards it was obvious that wasn't going to happen, as I was finding it quite a struggle to keep going. Determination is a wonderful thing and I made it a little past the day before's walk. The return trip was worse - sometimes I barely made fifty yards before having to stop for a rest (fortunately the walker has an integral seat). I felt fine the rest of the day, all I needed was ten minutes in the recliner chair. All very strange and I don't understand  it at all.

20/06/22 Walk(er)

Basically a quiet day, dealing with the week's accumulated paperwork etc. before taking a walker out on an expedition to the car park in The Gossets at the other end of the village and back. That's not much but the most I've done for a long time. Today, if the weather holds up, I'll try for a bit further...

I did find something in the paperwork that I had lost track of and have been trying to find. It's basically a list of my myeloma bone lesions (apart from the big left hip one) from my first PET scan in March 2020:

right posterior 4th rib

base of skull

proximal right femur

and more little ones in pelvis and low spine, which we know about anyway. Good to keep track of these things... As far as I know, none of them are active during the current remission, long may it last.

19/06/22 Colder...

Also greyer and wetter. Went to Tollesbury anyway and were rewarded by half an hour of sunshine. Had lunch at the marina:

Followed up with a shortish walk - I used just two sticks, leaving the scooter in the car. Balance and walking definitely improving.

Still no thunderstorms...

18/06/22 Hotter!

Temperatures hit 33 or 34C yesterday, which is far too hot for me. No thunderstorms yet. Planning to go to Tollesbury (on the Blackwater estuary) for lunch later. Will take the scooter and a couple of sticks in the hope of getting a bit of exercise in.

Have just joined a sleep apnoea group on Facebook, mainly in the hope of getting some clear and simple advice aout driving and whether I have to inform DVLA. I've read through page after page of online guidance, eac even less clear than the one before. One small problem to be cleared up is that everything refers to OSAS (Obstructive Sleep Apnoea Syndrome) but my diagnosis letter doesn't use that "Obstructive" term anywhere - instead it says I have"Moderate to severe sleep apnoea hypopnea syndrome". Is that difference significant? I haven't found an answer yet.