Last Friday's bloods all good, still waiting for paraprotein and free light chain numbers to come through, so OK to continue with Zometa on Tuesday and a new cycle of Len/Dex on Wednesday - although warned there may be a delay with the Lenalidomide / Revlemid.
Maximun age for transplant - no clear-cut answer of course, but one story of a man in the USA who had one at 90, and a repeat of the one about a patient of his who has been on Len/Dex for 98 cycles (seven and a half years) and still not going on to transplant. I forgot to ask how long he lasted after that... The simple answer is that as long as I stay fit from a heart and lung point of view (also liver and kidney, I suppose), then I'm OK for at least another two or three years before the transplant option will go off the table.
We agreed to continue at present and plan to re-open the transplant question in about a year's time, give or take, all depending on coronavirus second waves, winter 'flu, etc.. He thinks that the current rush of people having transplants (plenty of evidence on the Facebook group etc.) is mainly about people seeing "a window of opportunity" before the usual winter NHS crisis (+1 this year!), rather than the most objective analysis of their needs.
Genetics - he'll send me the report on my bone marrow biopsy, but the full analysis may not have been done either because of the nature of my myeloma or because we got an insufficient sample. Will probably do another BMB when there is the next possibility of a change in treatment.
👍😀 for this and for 20/07/20 (3) about PPP-AXA FixRheumatix
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