Monday 10 August 2020

10/09/20 (2) Myeloma anniversary

My actual myeloma diagnosis is dated 06/09/20, but it's now just about a year since my GP 'phoned me to say that the X-ray on my troublesome left hip had revealed a big osteolytic lesion there and some smaller ones elsewhere. That's when it became almost certain that my MGUS had progressed to myeloma. So I'm making 10th August the official birthday of my awareness of my disease. That's one year's survival ticked off. Many more to come, I hope.

2 comments:

  1. Many many more to come I hope!!!! ....and games of backgammon 😀FixRheumatix

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  2. I can take it back further - at least to the Parish Council meeting in March 2019 when I pathologically fractured my left hip, although I didn't realise what had happened at the time - thought it was purely muscular. There must have been at least a month or two for that lesion to have developed far enough that the simple act of standing up from a chair was enough for a fracture. So maybe Jan 2019 for the "beginning", insofar as it can be pinpointed. But I'll stick with 10th August for simplicity.

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22/10/2024 Results

Spoke to my consultant on the 'phone earlier. The CT scan showed no new disease. Good. The bloods showed everything (liver, kidneys, etc...