Thursday 13 August 2020

13/08/20 (2) Sunrise & the Facebook Myeloma Support UK group

Well, it wasn't much of a sunrise.

Red sky in the morning, sun not up yet:


Just a murky grey haze:



And finally the sun broke through. Much redder in real life than it appears here:












It wouldn't have been worth getting up for if I hadn't been wide awake anyway. And at 07:45 we had a short heavy shower. Still raining gently now (08:05), and thunder rumbling in the distance...

Myeloma content in this post: zero, apart from the dex being why I'm around at such ridiculous hours.

I spent some of the time on the Facebook Myeloma Support UK group, reading through posts and comments I've only skimmed over the last few days. It makes me realise how much further there is to go on this road. There are people on second and third lines of chemo (if not more), people who've had two transplants (and not the "tandem" kind, which is planned that way from the start and more common in the USA than in the UK). And people with horrifying tales of Peripheral Neuropathy (mainly feet), spinal surgery, as well as the usual dex side-effects. I've done remarkably well so far, and sooner or later it's going to get a lot worse. A year on, and still just a beginner. 

More bloods to be taken at Springfield tomorrow afternoon, and then the waiting bit to find if the PPs and FLCs are still behaving themselves. 'Phone consultation with Dr.Ch on Monday and Zometa on Tuesday. Maybe that little burst of activity coming up is why I'm turning all philosophical again.

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