Here's a summary of today's 'phone consultation with Dr.Ch, while it's still fresh in my mind:
Break from treatment for three months. This will give time for body to recover from two and a bit years of being hammered with potent drugs. So I stop both Lenalidomide (never again - AXA PPP will be delighted!) and Dexamethasone. Hopefully it might do something for the fatigue and falling asleep all the time as well
Continue with Rivaroxaban, Omeprazole, Aciclovir, Co-Trimoxazole.
"Watch & Wait", continuing with monitoring bloods four-weekly.
Next step will be second line DVD - Daratumumab, Velcade, Dex.
Thinking of second line is a little scary. While you're no further than first line you can imagine it stretching on indefinitely, but when you see the next stage coming you have to realise that you're on a progression through second and third and fourth... and that sooner or later you're going to run out of new ones.
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