10/10/19

Continued (but slow) improvement in the post-radiotherapy reaction yesterday. I'm hoping I'll be close to "normal" again by the time we see Dr.Ch again on Monday. Routine painkillers have been good enough, no need to hit the Oramorph bottle again.

Went into Chelmsford in the morning, mainly to do some business at the bank. Felt rather strange on the familiar streets with Walter Walker. Need to get used to that - even with maximum likely improvement I'm still going to need walking aids outside and on unfamiliar ground for quite a while, if not for as long as this lasts.

Got home, had a bit of lunch, and fell asleep for most of the afternoon. Woke up, made dinner, did as bit of research online, fell asleep again. Now, of course (01:20) wide awake! Don't know if all that sleep was just catching up on the many hours I've missed recently, or evidence of post-radiotherapy fatigue, or what. One good sign is that the excessive urination of the last couple of days has moderated a bit. Will need to tell Dr.Ch about that.

Had a good response on the Myeloma UK forum - encouraging about some aspects of the transplant with tips about getting trough the intensive chemo stage where they do their best to wipe out your immune system altogether before re-booting it with stem calls.

Sue has joined a Facebook Myeloma Carers group (I think that's what it is) and has been a bit overwhelmed by all the bad stories people post on there. I keep telling her that these groups attract negativity for all sorts of reasons, and rarely show the good stories as well. A bit like TripAdvisor.