Friday, 15 November 2019

15/11/19

And here we are at 02:30 back in Dex World again - wide awake and not feeling remotely like turning in for the night.
Apart from getting the Velcade injection, not much gain from the visit to the chemo nurses at Springfield. The main thing was to dodge the harder questions and to leave them to to Dr.Ch on Monday. But they did give me a 100ml tube of Pliazon cream for the dry thinning skin on my hands, lower legs, and feet.

This is week 5 of cycle 1, and it will run directly into week 1 of cycle 2 - no "week off" as I had that in the week of the lung infection.

Still no reaction at all to the Velcade. If you took all the comments on the online groups seriously, you'd never touch the stuff because of the problems you'd expect to get. It's important to remember that the online people are only a small self-selected group of myeloma patients and carers in an "echo chamber" reinforcing their own negative experiences, and that people who are going through treatment with no problems (or not many) generally are too busy getting on with life. Apart from the ones who write blogs, of course...

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