Tuesday, 2 March 2021

02/03/21 Advocacy Parter Panel

 Here's an extract from the stuff I received today from the Myeloma UK Advocacy Partner Panel:

The Myeloma UK Advocacy Partner Panel (APP) is a collaborative group of appointed patients, carers, family and friends that helps shape our advocacy work. The Panel is around 20 members strong and will work with Myeloma UK to help make the patient voice count with decision makers including politicians, Government and senior figures in the NHS, drug approval bodies and industry.

Should be interesting...

No comments:

Post a Comment

06/03/25 Another consultation...

 ...with my haematologist this morning, face-to-face this time. Paraproteins up from 6 to 10, light chain ratio up from 6 to 17, but that...