Had a good walk in Hylands Park yesterday, and that got my Activity for the day up to 632/400, as well as discovering a new circular route on good footpaths. ' Phone consultation with GP led to us deciding to stop treatment for the Benign Essential Tremor or whatever it is and just live with it at least until such time as it gets significantly worse. Increasing the propranolol dose would risk pushing blood pressure and heart rate into dangerously low levels, and reducing it to the level the NHS neurologist suggested would seem pointless. Dr.Ku says, rightly I think, that he'd be reluctant to move onto things like Diazapam while I'm on treatment for myeloma. The only loose end still to tidy up is the NHS DaT scan that Dr.Zo (private) was supposed to be arranging. GP asked me to contact him or secretary to chase this up. And there's the invisible oral surgeon as well, but I've done all I can about that.
It's been a bad day (after a bad week) on the Facebook Myeloma group. Too many deaths - one of them of someone who was admitted to hospital because of his advanced myeloma, caught COVID-19 in there, and died of it. After all that shielding... Too many people having real trouble coping with the emotional side (and some of them carers not patients). One of the admins even asked people to post some positive myeloma stories to counter the gloomy mood.
Too many graphic and uncomfortable reminders of what may lie in store further down the road. Best thing is to keep this remission going as long as possible. Had a letter today from Hancock & Jenrick about extending shielding to the end of March for the clinically extremely vulnerable - "guidance not law" - but I shall certainly follow it at least until a couple of weeks after the second Pfizer injection, and that's a good while away yet.
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