In a bit of a quiet patch at the moment - much the same as yesterday except Epping instead of Ongar. Played two matches, won one, lost one, and then as we were ten minutes or so short of the lunch break, played best of five ends and lost. Weather looks good for this evening so hoping to go to Tower later, and that'll be more than I've played for several weeks.
All fairly routine on the facebook myeloma support group that I (with several others) admin for. Plenty of activity but no particular pattern or posts that I've felt a need to dive in on. Apart,perhaps, from the man who replied to a post about fourth COVID injections with the unfortunate phrase "About the 4th shit..." I sent him a message and he edited. We also had a member application from an Egyptian "Counsellor" - very Arabic and Muslim, and including an interesting reference to his brain leaking out through his nose.
Application denied!
Less than a week now to my next consultation with my haematologist, and a little more than a week till the vampire nurses take the next lot of my blood. Fortunately I still seem to have enough of it left. So gradually moving into the tense and nervous stage of the month, and hoping that those paraprotein and free light chain numbers will stay where they are.
My husband similar age is 1 year behind you in treatment, almost a CR, called a VGPR, on lenalidomide maintenance we source from India as not funded till 3rd relapse in NZ. Couldn't have an SCT. About to have his 3 monthly "big" bloods" for his next appointment with specialist. So far so good. Covid is still having a major effect on people's lives, I feel for those in resthomes inNZ whom have been unable to see family for 4 months in case they get covid, they are mostly in their final months of life, and some have died not able to see their family, that does no good for anyone. Still christmas beckons, cold on your side of the world, hopefully hot here, we have had much needed rain these last few days so gardens and grass all newly washed and greening up. Vege gardens looking good.
ReplyDeleteForgot to add he has just taken up petenque as he can't play golf any more.
ReplyDeleteThanks for the comments - always good to know that this blog does get around a bit. What a set of coincidences! I did look at getting Lenalidomide from I ndia at one point but strongly advised against. Then my insurers caved in and paid for it anyway (as you will know, it's not cheap!) But if they ever turn awkward again, the Indian option is still there.
ReplyDeleteCOVID has been a nightmare for so many, and this new variant is so infectious... We just count ourselves lucky that we live out in the country and not in the middle of some over-populated city.
Petanque as well! It's a fine game and gets me out of the house and meeting new people. All good for the "mental health".
My best wishes to your husband and I hope the next set of blood numbers turn out well. And to you, because I know at first hand that myeloma can be hard on partners and carers in all sorts of ways.
Anyway, Happy Christmas and let's hope (again) for a better New Year.
Indeed, omicron has just hit our borders from germany via dubhai, in MIQ presently, trouble is all the vaccinations are wearing off, politicians trumpeting their success NZ over 90% doubl vaxxed, but it has taken most of the year, bribery handing over vouchers to our reluctant. The lenalidomide from India arrives very quickly, has to have a presciption from NZ Specialist, and then our Medsafe drug approval people give it the tick and it is then couriered straight to our front door. working well so far. Husband's medical insurance would only pay half. So this is better. He is out at petanque now, so it gives him a social outing he was missing. He loved his golf. I do enjoy your blog it is a great story of everyday events which ultimately is what life is about.
ReplyDeleteMore "everyday events" coming up later tonight! Useful information about Indian Lenalidomide, I'll fie that away in case I ever need it.
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